The Lyme Disease Association of Southeastern Pennsylvania has established an
on-line discussion group specifically for teenagers with Lyme disease.
Go to http://health.groups.yahoo.com/group/LymeTeens/ to join.
(This is also the address you can use to view the group discussion.)
How it works
You may already be familiar with how these groups work, but if not, here's a brief summary:
If you are not already a member of Yahoo Groups, you will have to join. It is free. You will have to answer a few questions, and make some selections.
Any member of the group can post a message for all other members to read. You can do this either by going to the group web address, or by sending e-mail to LymeTeens@yahoogroups.com. Your message will be instantly posted for everyone in the group to read.
There are three basic ways to view the messages: 1) go to the group web site and click on any new message you want to read; 2) specify during your registration that you want each new message to be sent to your e-mail address, or 3) specify that you want all the new messages sent in one e-mail once a day.
When you join, the e-mail address you specify will be available to all other members, but to no one else.
Screening new members
To be certain that we only have the people who should be there, the process for joining the group is a bit more complicated than most. You can apply at the address above, but before you will be admitted, the moderator (that's me) will have to approve you. For those of you I already know, this will occur as soon as I receive notification of your request. Any others will require some screening first. If you have friends who want to join, tell them to go through the registration process and you or they can also send e-mail to me (email@example.com) stating who recommended them.
For people we do not yet know, we will ask a few questions to qualify them. Once someone is accepted, their first post will have to come through me. After that, they will have full membership privileges.
I apologize for the complexity of this, but it is essential to do it this way so that LymeTeens is always a safe and private place for you.
We will have professional advisors who may comment from time to time. But basically it will be your group. You can ask questions, tell your stories, complain, brag about your success, etc.
You are always welcome to contact me directly with any questions, problems, complaints, suggestions, etc.
It's up to you to make this work, so take advantage of LymeTeens and tell any friends you think would enjoy participating.
Doug Fearn (firstname.lastname@example.org)